Parents and Adult Sibs Needed - Make Your Voice Heard

Even if you have never had genetic counseling, you can weigh in on what you think would be the most helpful by participating in this online survey designed to gather information about Down syndrome and genetic counseling. Please weigh in and make your voice heard!

From the researcher:

Parents of children with Down syndrome and adult siblings of persons with Down syndrome are invited to be in a web-based, survey research study. The purpose of this Penn State study is to learn more about needs and expectations for genetic counseling. No prior experience with genetic counseling is necessary. The survey takes about 30 min to complete. If you are interested in being in the study, please, go to https://online.survey.psu.edu/downsyndrome/

General results will be shared with the National Down Syndrome Congress at the completion of the study. For more information contact Kathy Peters, MS at 814-865-1392 or kfp1@psu.edu. Please, please, please help this research project on genetic counseling!

Do you enjoy participating in online surveys? Do you think that surveys like this are helpful?