1. Health

Resources and Support for Families

If you are a caregiver for someone with Down syndrome, it is important to realize that there are resources available to help you at all stages along the way - from large national support groups to more informal local support groups. Learn more about all of the different types of support available here.

Book
A truly wonderful book written by the mothers of children with Down syndrome. These personal, poignant and often painfully honest accounts of learning their child's diagnosis are uplifting and powerful.

Helpful Resources for Down Syndrome
A list of resources for parents of children with Down syndrome including national support groups, local support groups, books and helpful websites.

Finding Good Information on the Internet
There is a wealth of information on the Internet - some of it good, and some of it bad. How can you tell the difference? This tutorial from the National Library of Medicine will help you get started in your search for health information on the Internet.

A Readling List for Parents
A comprehensive list (with reviews) of books for parents of a child with Down syndrome.

Children's Books on Down Syndrome
Explaining Down syndrome in terms that a child can understand can be difficult, as can dealing with sibling emotions. Siblings of children with Down syndrome often experience jealousy (due to the extra attentions to their sibling), embarrassment and a variety of other emotions. These books can be a great place to start the discussion about these emotions.

Websites, Support Groups and Other Online Resources
A list of resources about Down syndrome including informational websites, parents websites, support groups and other online resources.

Locate Local Support Groups
A list of local support groups searchable by state from the National Down Syndrome Congress.

Tips for Families and Friends
Has someone you love recently had a new baby with Down syndrome? Are you trying to figure out the correct things to say and do? Here are some tips that you should read before you call.

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